Directory

Consortium organisation name Country
Institut National de la Santé et de la Recherche Médicale- INSERM France
Institute of Health Information and Statistics of the Czech republic- IHIS Czech Republic
Deutsches Institut fur Medizinische Dokumentation und Information- DIMDI Germany
Consorcio Centro de Investigacion Biomedica en Red MP- CIBER Spain
FISABIO Spain
Ministry for Health, Government of Malta- MFH Malta
Assistance Publique- Hopitaux de Paris- APHP France
Fundacion Para el fomento de la Investigation Sanitaria y biomedica de la Comunitat Valenciana Spain
Regione del Veneto-Veneto Region Italy
Department of Public Health Iasi- Directia de Sanatate Publica Iasi (DSP IASI)   Romania
EURORDIS- Rare Diseases Europe France
Collaborating partners
Maastricht University (on behalf of the EMRaDi project) the Netherlands
HSE Ireland
HL7 International Foundation Belgium
Consejería de Salud. Región de Murcia. Spain
Servei Català de la Salut (CatSalut) (in collaboration with a Rare Diseases Assessor Group)   Spain
Departamento de Salud del Gobierno de Navarra (Regional Department of Health of Navarre) Spain
Dirección General de Salud Pública de la Junta de Castilla y León Spain  
Departamento de Salud, Gobierno Vasco (Health Department, Basque Government)   Spain  
Institute of Mother and Child Republic of Moldova
Dirección General de Salud Pública. Generalitat Valenciana

 
Spain
UMF-IASI Romania
MetabERN Germany
Heidelberg University Hospital Center for Child and Adolescent Medicine, UKL-HD (ERKnet) – Germany
Erasmus Medisch Centrum- EMC(CRANIO ERN)  the Netherlands
Istituto Ortopedico Rizzoli – IOR(BOND-ERN) Italy
Great Ormond Street Hospital for Children NHS Foundation Trust – GOSH(EpiCARE) London, UK
Erasmus MC – Erasmus Medisch Centrum (ERNICA) the Netherlands
Polikliniek Endocrinologie (Endo-ERN)  the Netherlands
Azienda Ospedaliero Universitaria Pisana – Ospedale S. Chiara (ReCONNECT) Italy