Workpackage 2-Dissemination

Within this Workpackage* are the actions undertaken to ensure that the results and deliverables of the project will be made available to the target groups.

The project’s Findings and lesson learned leaflet ; the final leaflet and the General Public report are available!

A video explaining the benefits of using ORPHAcoding in Health Information Systems AND the RD-CODE project tools and guidelines it is available in English here, in Czech, in Italian, in French, in German, in Romanian and in Spanish, also a Slidedeck explaining further in detail the benefits of using ORPHAcoding in Health information systems is available here.

Engagement of the stakeholders via an early consultation exercise to assess their needs, in order for the material developed to be effective and useful. Moreover, an assessment of the satisfaction with produced materials has been carried out and suggestions for improvements has been collected and integrated in the final deliveries.

Multi-stakeholder workshops have been organised in order to ensure productive cooperation between the different stakeholders .


Multistakeholder workshop 1
May 2020PragueProject progress reports, roundtablesExecutive summary, report and slides available here

Multistakeholder workshop 2
November 2021Online Project progress reports, roundtables Executive summary, report and slides available here

The project dissemination plan is available here.

A ‘Kick off ‘ leaflet promoting the project is available here

A leaflet with mid-term achievements is available here

WP leader: Inserm

Participants: CIBERER and IHIS

*European projects can be divided into “work packages” (WP). A work package can be thought of as a sub-project, which, when combined with other work packages, form the completed project.