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This website is part of the project RD-CODE which has received funding from the European Union’s Health Programme (2014-2020).The content of this website represents the views of the author only and is his/her sole responsibility; it cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains

Latest News

Updated document « Specification and implementation manual of the Master file for statistical reporting with ORPHAcodes » available

The document « Specification and implementation manual of the Master file for statistical reporting with ORPHAcodes » has been updated and is available here, together with the new release of the Master-file.

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Orphanet data Visualisation tool available!

Web-based applications development by Orphanet was foreseen during this project to facilitate the informatic access to nomenclature data and allow flexible implementation into the various IT systems in use in[…]

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Existing experiences and Guidelines about the coding of undiagnosed rare diseases patients available

To tackle the issue of coding undiagnosed patients’ a collection of existing experiences of coding of undiagnosed or suspected RD patients has been produced, a guidelines proposal has been issued[…]

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