Background Report on the “coding environment” of implementing countries available
The Background Report on the “coding environment” of implementing countries has been prepared by the WP5 participants, lead by Veneto region, and with the contribution of WP4 participants. It was released in July 2019 an dit is available here.
It is organized into 4 parts describing the coding starting situation of three RD-CODE participant countries (Czech Republic, Malta and Spain) and of Austria (RD-CODE observer). For each country, an overview of the following themes is provided: national RD policy framework, coding framework, RD registration, Centres of Expertise/ERNs, undiagnosed RD patients.Contents are based on the answers provided by country respondents to the on-line survey, which constituted Mls 5.1. Additional material consulted to prepare the Report is listed in the Bibliography section.