Guidelines for coding Undiagnosed Patients video

This video is an introduction to the Guidelines for ORPHAcoding undiagnosed patients that are described and available in the document Existing experiences and Guidelines about the coding
of undiagnosed rare diseases patients
. In this document, a collection of existing experiences of coding of undiagnosed or suspected RD patients has been produced, a guidelines proposal has been issued as well as a consensus document on codification of suspected/undiagnosed rare diseases are given in order to achieve internationally standardized data collection.

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