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RD-Code project leaflet available

The RD-code KOM project leaflet is now available!

RD-CODE project Kick off meeting

To take public health action on rare diseases, it is necessary to know how many people are affected by these diseases (prevalence), how these conditions impact those affected, and to monitor rare diseases’ medical and societal impact. The lack of basic epidemiology for rare diseases across Europe contributes to a lack of recognition and hinders…
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